I posted the video of Binny’s speech that he gave at the Team Lifeline Pasta Party on his Facebook page, but the sound quality was poor and people asked for copies of the speech. So with Binny’s permission, I am posting it here. I edited it a bit to include some of the lines he ad-libbed (though some I know I missed), but this is all his.
Sometimes you need a lot of strength just to have a celebration. I’m not just talking about the strength to label 250 seating cards and design shirts and shlep boxes. I’m talking about the strength to decide to celebrate even when you sometimes don’t want to.
I finally understood the myth of Sisyphus when my son was diagnosed with a brain tumor two years ago. And like the legend, we were faced with a huge mountain, a massive, incomprehensible rock, and a job that no one would ever sign up for.
I’m not sure when the transformation occurred, so it must have happened slowly. But a few weeks ago, when I went to Vegas to run in the Rock ‘n Roll Marathon, my friends decided I was an athlete. I’m not.
Somewhere between closing the metaphorical door of any traumatic situation and getting sucked into the constant vortex of pain and victimhood, there’s a middle place of relative contentment. Of just understanding that it is what it is.
This tumor with all its power to put him into a world of darkness – a world of black and white – cannot kill the colors in his soul. It cannot touch what Coby can still share with the world.
So here goes. My list of things I learned running in a marathon (or half-marathon).